“Non-personally identifiable information” is information that any single item of which, by itself, cannot be used to identify or contact You, such as demographic information (for example, age, profession, gender, current location and other geo-location information, zip code, birth date, or year of birth), Internet Protocol (IP) addresses, browser types, information relating to Your device, domain names, and other statistical data involving the use of the Website. Certain non-personally identifiable information may be considered a part of Your personally identifiable information if it is combined with other identifiers (for example, combining Your zip code with Your street address) in a way that enables You to be identified. But the same pieces of information are considered non-personally identifiable information when they are taken alone. With respect to location information, please note that We may use satellite, Wi-Fi or other network-based location data, such as Your IP address. Use of assisted positioning methods may involve exchanging Your location data wireless network identifiers along with Your unique device or network service provider identifiers with a location server. Your device may connect to other service providers’ servers, which are not controlled and operated by MMR.
“Personally identifiable information” is any information that could be used to identify, contact, or locate the person to whom it relates (such as name, residence, telephone number, e-mail address, user names and passwords; Your consents, preferences and self-identifying feedback; certain information relating to Your device; or any other identifying information). Such personally identifiable information may be combined, directly or indirectly, with any health information about that person, including but not limited to, health information that MMR may receive from sources other than such person.
“Personal information” is information relating to an identified or identifiable natural person.
“We, Us, Our” means Manhattan Medical Research Practice, PLLC.
SUMMARY OF POLICY: Except as provided herein or as authorized by You, Your personally identifiable information may be disclosed by Us only to the company sponsoring a clinical study, medical personnel involved in a clinical study, regulatory and government entities, and administrators managing various aspects of a clinical study.
HOW INFORMATION IS COLLECTED
Submission by You and Third Parties We will collect personally identifiable and other information from You if You voluntarily submit the information to Us through any mechanism (including online and offline channels), such as when You register for an account, provide responses to questionnaires, or submit inquiries to Us. In addition, We may receive personally identifiable and other information about You from third parties.
Cookies and Action Tags We may collect non-personally identifiable information passively using “cookies” and “action tags.” “Cookies” are small text files that are placed on Your computer or mobile device in order to identify Your web browser and the activities of Your computer or mobile device when using the Website. Cookies are used to personalize Your experience on the Website (such as dynamically generating content on webpages specifically designed for You), to assist You in using the Website (such as saving time by not having to reenter Your name each time You use the Website), and to allow Us to statistically monitor how You are using the Website to help Us improve Our offerings. You do not have to accept cookies to use the Website. Although most browsers are initially set to accept cookies, You may reset Your browser to notify You when You receive a cookie or to reject cookies generally. Most browsers offer instructions on how to do so in the “Help” section of the toolbar. However, if You reject cookies, certain features or resources of the Website may not work properly and You may experience some loss of convenience. “Action tags,” also known as web beacons or gif tags, are a web technology used to help track Website usage information, such as how many times a specific page has been viewed. Action tags are invisible to You, and accessing any online service, including advertisements, from the Website may result in the creation of action tags. By using cookies and action tags together, We are able to gain valuable information to improve Our Website and other services and measure the effectiveness of Our advertising and marketing campaigns.
Log Files We also may collect non-personally identifiable information through our Internet log files, which record data such as user IP addresses, browser types, domain names, and other anonymous statistical data involving the use of the Website. This information may be used to analyze trends, to administer the Website, to monitor the use of the Website, and to gather general demographic information. We may link this information to personally identifiable information for these and other purposes such as personalizing Your experience on the Website and evaluating the Website in general.
PROTECTIONS AND CHOICES ABOUT THE USE OF PERSONALLY IDENTIFIABLE INFORMATION CONCERNING CLINICAL STUDIES: Whenever a person interested in participating in a clinical study contacts a call center or website that has been set up for the study, any personally identifiable information is provided voluntarily. The exact language of the questions asked and the consent sought is generally reviewed and approved by an independent board or committee overseeing the research at each study site. Each of these boards or committees (known as Institutional Review Boards [IRBs], Research Ethics Committees [RECs], and Institutional Ethics Committees [IECs]) is an independent body charged by government regulations with overseeing the study, including all recruitment efforts, in order to protect the welfare of the patients participating in the study. A person can choose at any time not to provide the information requested by a call center or website, but (as You will be notified at that time) this may exclude You from continuing to use the call center or website service.
Important information about the clinical study (contained in what is known as an informed consent form) is reviewed with each patient during the enrollment process by a study professional at the study site. Each patient must read and sign this written information before enrolling. The written information describes possible health risks and possible benefits of participating in the study, as well as what personally identifiable information will be collected in the study and who is able to use or disclose any personally identifiable information. Anyone can decline to participate in a study at any time. When a patient withdraws from a study after enrolling, no more personally identifiable information is collected. Any personally identifiable information or personal information collected prior to withdrawal, however, may not be deleted if it has been relied upon for purposes of completing the clinical study’s research (except to the extent that such deletion is permitted by law).
DATA INTEGRITY: Except as otherwise stated in this Policy or as authorized by You, We use Your personal information in a way that is compatible with and relevant for the purpose for which it was collected. To the extent necessary for these purposes, We take reasonable steps to ensure that personal information is accurate, complete, current and reliable for its intended use.
OPT-OUT CHOICES: If You no longer wish to have Your personal information disclosed to third parties, You may choose to “opt-out” by notifying Us to that effect. To do so, send an email to info@ manhattanmedicalresearch.com. Please be aware that Your personal information may have been disclosed to third parties prior to Our receipt of Your notification. Also, MMR will provide You with notice before using Your personal information for a purpose other than that for which it was originally collected or subsequently authorized by You, and You may choose to “opt-out” of such use by following the directions provided in the notice. However, even after any “opt-out” or removal of Your personal information, We reserve the right to disclose Your personal information to a third party when We believe in good faith that We are required to do so in order to comply with an applicable statute, regulation, rule or law, a subpoena, a search warrant, a court or regulatory order, or other valid legal process.
SENSITIVE INFORMATION: If We collect information from You specifying medical or health conditions; racial or ethnic origin; political opinions; religious, ideological, or philosophical beliefs; trade union membership; information on social security measures or administrative or criminal proceedings or sanctions (which are treated outside pending proceedings); or information with respect to personal sexuality (collectively, “Sensitive Information”), We will not (a) disclose such Sensitive Information to a third party or (b) use such Sensitive Information for a purpose other than those for which it was originally collected or subsequently authorized by You without obtaining Your affirmative “opt-in” (unless We believe in good faith that We are required to do so in order to comply with an applicable statute, regulation, rule or law, a subpoena, a search warrant, a court or regulatory order, or other valid legal process).
INFORMATION FROM CHILDREN UNDER 13 YEARS OF AGE: We are committed to protecting the privacy of children. The Website is not designed for or directed to children under the age of 13 and We do not collect personally identifiable information from any person We actually know is under the age of 13.
THIRD PARTIES GENERALLY: We may provide to third parties non-personally identifiable information, including where such information is combined with similar information of other users of the Website. For example, We might inform third parties regarding the number of unique users who use the Website, the demographic breakdown of Our users of the Website, or the products and/or services purchased using the Website and the vendors of such products and services. We may also provide to third parties personally identifiable information. For example, We might share our user’s responses to questionnaires, preferences, and e-mail addresses with third parties in order for third parties to assess a user’s qualification to participate in a clinical study. The third parties to which We may provide personally identifiable and non-personally identifiable information may include potential or actual advertisers, providers of advertising products or services (including vendors and website tracking services), merchants, affiliates and other actual or potential commercial partners, sponsors, licensees, researchers and other similar parties.
DATA SECURITY: Whenever We store or transmit personally identifiable information, We use a number of security procedures to prevent unauthorized access or disclosure. Our Website has security measures in place intended to protect the loss, misuse, and alteration of the information under Our control. We take reasonable steps to safeguard personal information We collect from unauthorized access or disclosure and accidental loss, misuse, alteration, or destruction. Notwithstanding the above commitments, be aware that there is always some risk involved in transmitting information over the Internet. There is also some risk that others could find a way to thwart Our security systems. As a result, while We strive to protect Your information, We cannot ensure or warrant the security or privacy of any information You transmit to Us, and You do so at Your own risk.
DO NOT TRACK: The term “Do Not Track” refers to an HTTP header offered by certain web browsers to request that websites refrain from tracking the user. We take no action in response to Do Not Track requests.
PIPEDA COMPLIANCE: This website complies with the Personal Information Protection and Electronic Documents Act (“PIPEDA”) and other applicable privacy and health information legislation. One of the underlying principles of this legislation is to obtain your consent in order to collect, use or disclose your Personal Information (defined below), and to ensure that you clearly understand the policies and practices regarding how this information is handled.
BUSINESS TRANSITION: If We experience a business transition that affects the way personally identifiable information is treated in any material way, such changes will be included in an updated version of this Policy posted in the same locations as the previous version of this Policy. We encourage You to check such locations periodically for any changes.
ACCESSING OR CHANGING PERSONAL INFORMATION: Anyone wishing to review or change or correct (or delete, if inaccurate) his or her own personal information should contact Our privacy officer at Manhattan Medical Research Practice, PLLC, 215 Lexington Ave 21st Floor New York, NY 10016, +1 212-480-3333, firstname.lastname@example.org by mail, telephone, or e-mail. Notwithstanding the foregoing, We may be prevented by law from deleting an individual’s personal information if such information has been relied upon for purposes of completing clinical study research.
ENFORCEMENT, OTHER INQUIRIES, COMMENTS, OR COMPLAINTS: MMR uses the self-assessment method to verify the attestations and assertions made herein and to ensure that its privacy practices have been implemented as presented herein. If You have a question, concern, or complaint about Our handling of Your personal information, or if You believe Our response to an inquiry has not been satisfactory, please contact Our privacy officer at the address above. Our privacy officer will investigate and try to resolve in a timely manner any concern or complaint about Our use or disclosure of Your personal information in accordance with the principles contained in this Policy, including correcting any personal information, using personal information consistent with the U.S. Privacy Principles, reversing or correcting the effects of noncompliance, and assuring that future processing of personal information will be in conformity with this Policy.